Community Voices
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Welcome to our virtual community! Start by browsing through the personal stories featured here.

We have organized these stories into two categories: Your Stories – stories sent to us at the Spondylitis Association of America – and selections from The Faces of Ankylosing Spondylitis project. 

We’d love your story as well! Send it to us at Programs@spondylitis.org

Tell A Story with SAA Storytellers, Your Stories on Stage! Send Us Your Story Pitch!

Are you interested in being a part of SAA Storytellers, Your Stories on Stage?

SAA is always looking for those in the spondyloarthritis community to tell their story (patients, caregivers, medical personnel, and friends of the community – all are welcome!).

ByLisa See, Novelist

Novelist Lisa See on Pain and Perseverance

Editor’s Note: Your Stories typically features first-person narratives from people living with spondyloarthritis and their loved ones. Since…

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ByBea Caillet, HHC, CGP

Living Well with AS, Naturally

Today, while I am not completely pain-free, my pain is manageable without any medication. Now, whenever I experience…

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ByHelen Jones

Navigating Flares: My Experience and What Helps Me Get Through…

One of the toughest parts of AS is its invisibility; it can…

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ByEdem & Isaac

Your Stories: Talking to Your Kids About SpA by Edem…

On one of the many online forums for people living with SpA,…

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ByChristi Taylor-Gentry

Your Stories: A Sisterhood of Strength for Black Women with…

The relief was because I had struggled with unbearable pain for years…

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ByAnonymous Author

Your Stories: A Bit of Positivity

It’s been seven years since my diagnosis of ankylosing spondylitis. For such an anniversary I was inspired to relay this personal story towards diagnosis.

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